The broad objective of the National Centre for Disease Informatics and Research (NCDIR), Bengaluru, are to sustain and develop a national research data-base on cancer, diabetes, cardiovascular diseases (CVD), and stroke through recent advances in electronic information technology with a national collaborative network, so as to undertake aetiological, epidemiological, clinical and control research in these areas. The primary focus of centre includes established nationwide data-base for cancer through the National Cancer Registry Programme and the Cancer Atlas Project. The secondary focus is to facilitate and coordinate research activities by collaborating centres towards epidemiological and clinical studies in diabetes, CVD and stroke.

• 1. Most important publications, guidelines, CRAB, policies includes: • North East Report (BOOK): This report on the cancer burden of 8 North Eastern states is based on the analysis of the data from 11 Population Based Cancer Registries (PBCR) and 3 Hospital Based Cancer Registries (HBCR) from 2012-14. The coverage by the PBCRs is around 35% of the population of the North Eastern states and reflects the cancer profile of the region fairly well owing to representation of all the eight states of North East partially or completely. • Three year Report on Population Based Cancer Registries-2012-2014. • Consolidated Report of Hospital Based Cancer Registries-2012-2014. • Consolidated Report of of the Hospital Based Cancer Registries: 1984 – 1993, An Assessment of the Burden and Care of Cancer Patients. • Consolidated Report of the Population Based Cancer Registries: 1990-96 • Guidelines for setting up of Population Based and Hospital Based Cancer Registries. • NCDIR Poilicy on Data Processing and Disclosure, 2017. • Handbook on National Ethical Guidelines for Biomedical and Health Research Involving Human Participants, 2018. • National Ethical Guidelines for Biomedical and Health Research involving Human Participant, 2017. • National Ethical Guidelines for Biomedical Research Involving Children, 2017. • Ethical Guidelines for Biomedical Research on Human Participants, 2006. • Policy Statement on Ethical Considerations Involved in Research on Human Subjects, 1980. • Annual Report 2016 – 2017. • Cancer Registry Abstract CARB. • CRAB – Vol. 21 No.1, October 2016. • CRAB – Vol. XIX, No.1, December 2014. • CRAB – Vol. XVIII, No.1, November 2013. • CRAB – Vol. XVII, No.1, November 2012. • CRAB – Vol. XVI, No.1, November 2011. 2. National Non-Communicable Disease Monitoring Survey 2017-18. 3. CANCER SAMIKSHA: Assessment and analysis of cancer in India based on the data from the National Cancer Registry Programme (NCRP). 4. National Stroke Registry Programme collects information on patterns of care in patients with Stroke from different parts of India. 5. Ethics Committee Tools. 6. What information and the extent of information research participants need in informed consent forms: a multi-country survey. BMC Med Ethics. 2018 Sep 15; 19(1):79. doi: 10.1186/s12910-018-0318-x. 7. National Ethical Guidelines for Biomedical and Health Research Involving Human Participants, 2017: A commentary. Indian Journal of Medical Ethics. 2018 Jul-Sep; 3(3):201-20. 8. Ethical Considerations in Human Genome Editing- An Indian Perspective. Asian Biotechnology and Development Review, 2018; 20 (1&2); 47-58.